I see my next post took a while. I guess my mind needed to
go through major decluttering as my heart did some healing (yes, no matter how
tough-looking, i get heartbroken too :c )
Besides that, these are what i have been busy with in the
past month.
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Photo Courtesy of Outbreak Manila Facebook Page |
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Ryan and I getting ready to run for our lives. Outbreak Manila in Nuvali. |
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Mek and I in the National Geographic Earth Day Run. We actually finished it! Hooray! |
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night swimming (lots and lots of it, i wish)
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my usual routine of biking and playing frisbee with the handsomes
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target shooting |
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arcade. love boat. |
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tree climbing in the province |
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just fooling around the hospital |
Phew, it sure was a busy first summer month. (fine, if you actually do
truly know me, you’d know this is my normal)
Sooo anyway, this blog got me really hyped up. There was
just overflowing support from family and friends that i truly am thankful for.
I had numerous brilliant ideas of topics to write about with no idea how to
start. But then i guess, that’s precisely it – not having any idea of what to
do but still ending up doing it.
Because you know that you can not remain not
doing anything.
Because you feel so strongly about something.
Because you love.
You see, I started this what I’d like to call Social Skills
Therapy for my brother in the past month.
Social skills? What the hell, right?
To put it really simple, I’d say its basically being normal - the opposite of being
weird. This does not necessarily dictate though that we should all be the same
or lose our individuality, it’s really more knowing how to act and carry
yourself in front of other people. From something as simple as looking at
someone’s eyes when talking, to something a little more complex like not
staring at anyone’s eyes when inside an elevator. Don’t get me wrong, im not
against being unique and true to one’s self. I just believe that we have to
conform up to a certain extent to maintain harmony and peace. Well, generally,
social skills aren’t directly taught to us – well, at least not traditionally inside
a classroom. Yet we do learn them or it could be that we have them all along.
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You laugh at me 'cos I am different. I laugh at you 'cos you're all the same. |
This isn’t the case of individuals with Asperger’s Syndrome
though. They have deficits in social skills. My brother for example can talk
about topics that he’s interested in like the Arcade game, Technika or Krispy
Kreme doughnuts for hours and never realize that the person he’s talking to is
not interested. Also, when he talks about these, he does not realize that you
do not have the knowledge that he has about it. He assumes that whatever it is
that he knows, you do too and however he sees things is the way you see it as
well. Very classic of a child with the condition. He initially didn’t get what
being weird is. I remember how every time i tried to talk to him about how my
day went, he’d change the topic to his interest after my first sentence. This
might appear rude to most of you, but trust me, in Cedric’s and other kids with
AS’ case, they just lack some skills. I never really took it against him and i
hope none of you do as well.
I remember a great mentor from whom I have learned and gotten
so much inspiration from, Teacher Dos de Jesus. She once shared how Cedric
seemed to see his problems. He did not know how to differentiate big and small ones. His reaction to something small, like losing a pen is similar to
something big, like getting suspended from school. He’d react in rage and would
often shout in dismay. Unlike us, who didn’t have to be taught reactions like
this, he had to. I remember teaching him that a problem is only big when it
involves his health and safety. Everything else must be small or something that
can be solved or settled.
I barely know what to do for his Social Skills Therapy but i
knew i had to start somewhere, somehow. And if not now, when? I started reading
books on anger and anxiety management. Michelle Winner’s books on social
thinking and perspective taking skills helped a lot as well. Yet it was Jed
Baker’s Social Skills Training that really gave me a push. It was very do-able.
There was a checklist that has to be filled in the beginning to recognize which
specific social skills would be addressed.
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Social Skills Training by Jed E. Baker, Ph.D. |
Among the many, tone of voice, how and when to interrupt,
and staying on a topic were the first that we worked on. It was especially fun ‘cos
I got my other siblings, Mek and Cassy to join us. Besides discussing ground
rules, we talked about topics that interest us and acted out voices based on
different emotions and situations. We even recorded it so we could listen to
ourselves. I think it was important that we all enjoyed what we do so I made
use of games for us to play. I was vigilant of how they would stay on topics
and interrupt conversations. I’d remind them how to if it was done
inappropriately and praise them whenever they did well. In the successive sessions,
i made use of a diagram for them to be aware of the tone of their voices when
they speak. It was also important that I follow up outside sessions. I’d
continually praise them when I see them applying what they learned.
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the marker points to the speaker's tone of voice so they'd be aware if there is a need to adjust |
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got answers from them and wrote it down |
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How and When to Interrupt |
I was nervous the whole time. I was apprehensive to start
something like this with Cedric as I felt I might not be equipped enough. Yet
being with him, seeing his difficulties in coping and making friends for example
made me feel like i cant not do anything for him. i knew i just had to.
Luckily, we've had three sessions (once a week for an hour per session) and things have been working quite well. I’m glad to say I’m learning from it session by session but more
importantly, I’d like to believe that this is something that we would all
benefit from. And though I know that it is still too early to actually see
concrete results, going through all these makes me feel at peace and
continuously hopeful.
For now, my siblings’ roaring laughter is enough to keep me
going. And oh, did i mention Cassy goes “Dichi, do we really have to do this
every Wednesday only?? Can't it be everyday??” That sweetheart. <3
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Mek, Ced and Cassy <3 |
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